MRI results

Today Aiden had to get a school physical because he starts preschool in the fall! He is going to be in a special needs class that will allow him to recieve OT and PT every week :) Anyways, right as the visit with the doctor started, he received a fax... it was the MRI results! It was very unexpected to get them so soon, and now I wish I hadn't! Basically, the scan found an abnormal band of scar tissue and cysts along the left lobe of his brain. The paper said that it looks like there is evidence of an old infarct (which I did expect) and something called schizencephaly. That's the part I didn't expect, and I am stressing about. It looks pretty rare, the pediatrician didn't really know what it was, so googled it. Yeah, I know that is never a good idea, but there really isn't much info out there on it, other than it appears to be a genetic deformity of the brain. It does look like we got extremely lucky with Aiden. In about 17% of kids with it, there is not a lot of obvious effects. In most cases though, the children have full paralysis and mental retardation. Since Aiden scored at the 4-5 year old level in the verbal and cognetive areas of his development exam last month, we know that there is no mental impairment at all. What scares me is his risk for seizures. Apparently, a large number of kids with the disease develop epilepsy by 4-5 years old. I really won't know much else about it until his neuro appointment, so it looks like I have 3.5 weeks to sit around worrying and watching for any sign of a seizure in Aiden! I do have to wonder about the time I brought him to his doctor when he was sick and he had a seizure in the waiting room and was told it was a febrile seizure, even though his temp wasn't that high (I think he had been around 102 the wholeday). He then had 2 more that night, and I didn't take him to get checked because I was warned it would likely happen. I guess just more stuff to ask the doctor!